Sunday, September 9, 2012

Please help fight Rett Syndrome!

Rett Syndrome
Rett syndrome is a neurodevelopmenal disorder that is almost always found girls. Children with Rett syndrome usually appear to develop and grow normally before the symptoms begin. Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion. It is often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay. It can be found in all racial and ethnic groups. A little girl is born with Rett syndrome every 90 minutes. These girls will regress losing their ability to walk, talk and so on. Complications for these children include seizures, sudden death in their sleep and scoliosis. There is no cure at this time but with help and research a Cure is Possible! This research will have a great impact on many other disorders such as Autism, Alzheimer's, schizophrenia, bipolar disorder, and many more.
I have been blessed to know many women fighting in this Battle against Retts. These women are some of the strongest people that will ever walk this Earth.
My sweet friend Jessica has been directly affected by this disorder. Her precious daughter Kelsiana has rett syndrome. Kelsiana is a beautiful,strong girl but has already been affected by the regression caused by Rett's syndrome. She has lost most of her purposeful hand use and suffers from seizures. I have seen her mother struggle and fight for her daughter. The love she has for her along with the love she has for all the other young girls affected by Rett's is beautiful and inspirational.
Please visit Kelsiana's FirstGiving page HERE to learn more. On her page they are raising money for the IRSF (International Rett Syndrome Foundation) 2nd annual Georgia Strollathon for Rett syndrome research .If you are able to financially help fight this war on Rett Syndrome please do so. You can donate directly on her page. Every little bit helps..


No comments:

Post a Comment

Share Some Love & Leave A Comment